Holding Down a Job with Fibromyalgia

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Holding Down a Job with Fibromyalgia

Working with fibromyalgia: what you need to know

Fibromyalgia affects people in different ways and to varying degrees. Some people manage their symptoms well enough to continue working without major disruption. Others find that the condition makes holding down a job extremely difficult, particularly during periods when symptoms worsen.

The severity of fibromyalgia can range from mild discomfort to widespread pain that interferes with most daily activities. Where you fall on this scale will largely determine how much your working life is affected, though this can change over time.

Mild to moderate fibromyalgia and employment

If your symptoms sit at the milder end of the spectrum, you may find that work remains manageable most of the time. Flare ups, when pain and fatigue increase, are common, though how much these affect your ability to work varies considerably from person to person.

Many people with mild or moderate fibromyalgia continue in full time or part time employment. Medication prescribed by your GP can help manage pain and related symptoms such as poor sleep or low mood, though effectiveness varies between individuals and some people experience side effects that limit what they can take. Finding a treatment approach that helps you is worth pursuing, but it does not guarantee that work will become straightforward.

Self-care strategies can also play a role. Stress management, gentle exercise where tolerable, and attention to sleep patterns may help some people alongside medical treatment, though results differ.

It often helps to be open with your employer about your condition. You do not have to share every detail, but letting them know you have a health condition that causes occasional difficulties can make it easier to ask for adjustments when you need them.

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When symptoms are more severe

Severe fibromyalgia can make everyday tasks exhausting. Getting through a working day may feel impossible at times, especially if your job involves physical activity, long hours, or high levels of concentration.

If you fall into this category, your GP may refer you to a specialist or a pain management clinic, depending on their assessment and what services are available locally. These services can offer support beyond medication, including physiotherapy, psychological support, and advice on pacing your activities. However, access to such services varies across the NHS, and waiting times can be significant in some areas.

Some people with severe symptoms find they need to reduce their hours, change roles, or stop working altogether. This is a personal decision that depends on your circumstances, the nature of your work, and how your symptoms respond to treatment over time.

Your situation may be slightly different. ask a question below ↓ and our editorial team will reply with our advice.

Workplace rights and support

Under the Equality Act 2010, fibromyalgia may qualify as a disability if it has a substantial and long term effect on your ability to carry out normal daily activities. This means your employer has a legal duty to make reasonable adjustments to help you do your job.

Reasonable adjustments might include:

  • Flexible working hours or the option to work from home
  • More frequent breaks during the day
  • Adjustments to your workstation or equipment
  • Changes to your duties during flare ups
  • A phased return to work after a period of absence

The Access to Work scheme, run by the Department for Work and Pensions, can provide practical support and funding for adjustments that go beyond what your employer would normally be expected to provide. The scheme requires an assessment, and approval depends on your specific circumstances and the assessor's recommendations. You can find details and apply through GOV.UK.

If you are unable to work, you may be able to claim benefits such as Personal Independence Payment or Employment and Support Allowance. These require assessments, and not everyone who applies will qualify. The application process can be lengthy and complex. Check GOV.UK for current rates and eligibility criteria, or speak to a welfare adviser at your local Citizens Advice for help with applications.

Finding what works for you

There is no single answer to whether you can work with fibromyalgia. It depends on the severity of your symptoms, the type of work you do, and the support available to you. Because fibromyalgia symptoms fluctuate, your capacity to work may also change over time.

Speaking to your GP is a sensible first step if you are struggling. They can review your treatment, consider referral to specialist services where appropriate, and provide evidence if you need to apply for benefits or request adjustments at work. Occupational health services, where available through your employer, can also help bridge the gap between your health needs and your job requirements.

Whatever your situation, support is available, and taking time to understand your options can help you make decisions that suit your circumstances.

The Next Step

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Ask Fibromyalgia Syndrome a Question
Meme 17/10/2020 at 9:32 am
I have been struggling with fibromyalgia for 10 years but I do believe I’ve had it longer. I’ve been trying since 2017 for some form of help and basically pip has said the can’t help as I work and drive a manual car and I socialise
Annette 12/10/2020 at 4:04 pm
I was just diagnosed with fibromyalgia, osteoarthritis, and carpel tunnel in both wrists and hands, I have been off work for 5 months, because i work at Walmart and they keep saying they don't have a position for me due to all my restrictions. So i'm stuck looking for another job in the mean time but there are no jobs in my area that i can do with all the chronic pain i have and the fatigue, and brain fog. I was looking for remote work with covid and all but no jobs for that either. Im slowly using my savings to live off of. I am not sure what i am gonna do. I did file for disability, although im sure i wont be approved. Have any of you tried filing for disability at all?? Any advice would be appreciated.
Helen 23/09/2020 at 11:33 am
I've had fibromyalgia for several years now and it's got a lot worse this past year. I work in retail and I've had to take a few days off here and there due to the pain and stomach upsets. I recently had a flu virus and did a Corona virus test but thankfully it was negative but my absence rate is now rather high and my employer has started being nasty about it basically. He clearly doesn't understand or know what fibromyalgia is or can do to a person mentally, emotionally or physically as he stated that my severe back pain wasn't fibromyalgia!!! And that we needed to discuss my absences. I was referred to the occupational health person and the suggestions she gave have not be followed despite my asking. Where do I stand if they try to sack me? Any advice would be greatly appreciated.
Meg 31/07/2020 at 10:28 am
I have firbomylaiga for 3 years.Am a carer part time.Sins January Ihave was become weaker and in a lot of pain from sharp pain in lower back,stinging,and burning in my thighs. Am sensitive to light and noises.I.ve been off work for four weeks now.Am getting more rest but still feeling fatigue all the time I put a brave face on at work and people say I don't look like am in pain.Am not sure what to do about work.
Saz 17/05/2020 at 6:28 pm
Hi my Job role is a cleaner and I've been off work for 8 weeks im in chronic pain I dont wanna loose my job but just ain't fit for work at the minute any advice please ?
Liz 03/05/2020 at 3:36 am
I feel so tired and devastated I need to take brake anything the a start doing migraine,insomnia ,loss memory ,stomach pain,sensitive a light ,fatigue is I move more the 10min I don’t now how can be possible the you have joints pain and inflammation sometimes a hug can be painful ,anxious,depression plus and my case I have sensitive stomach help if you now any treatments the you now I just want my life back
Charli 02/09/2019 at 10:29 am
I was diagnoaed with fibromyalgia about 2 weeka ago. Before that doctors told me it was endometriosis (i have this too). However it has just been getting worse and worse. Ive been signed off for 3 weeks, however i had my friends dogs over the weekend and walking 3 miles a day and getting up at 7am took it out of me and i was so emotional and tiered and then struggled to sleep last night as it hurt to lie down.
Does anypne know who to go to for advice as im so concerned at the moment. It doesnt help im new to it all and have noone to talk to.
Terri 11/08/2019 at 8:48 pm
I've had fibromyalgia for 7 yrs and it's getting progressively worse. I have been very fortunate with my employer who has bent over backwards to help me stay in work. Despite this, every day is a struggle and getting harder.....
I count my blessings because I know some sufferers dont have the support I've had yet I have reached the point where I question the desirability of continuing to go on, feeling like this. I will soon have to make a decision to remain in work or take a leap into the unknown and leave. Very scary.... I wonder often how I came to land up like this..... but like Pandoras box - there is always hope....
Protopunkqueen 11/06/2019 at 11:35 am
I'm 52...work f/t as a team leader in a busy theatre..as well as freelance festival and event work. Partner WONT WORK!!!Said I'm lazy because I wanted to go a short cut as in pain. I'm literally having no time to rest as at work on doubles.... Do EVERYTHING at home too.... At end of patience and tether.... In a lot of pain most days....no support so I just get on best I can.....often wonder if I'm there to fund holidays and everything else....work are OK but need a rest
Ksnads 10/05/2019 at 2:02 pm
Hello.

I've been diagnosed since Dec 2018 with fibromyalgia after a 13 year fight for a diagnosis for my chronic pain and fatigue (I was diagnosed with Hypermobility Syndrome and IBS and CFS, so knew there was something underlying) I am struggling to hold down my job, having been sacked and on disciplinary in previous positions for absences and again being a step before a disciplinary. I don't know where to go from here. My doctor wont give me painkillers and is wanting to treat me with just anti depressants. I am at my wits end. I'd really appreciate any advice.
Ali 11/04/2019 at 8:48 am
I am off work at the moment. I have been reading CFS UNRAVELLED by Dan Neuffer. It is very informative. It appears that stress/trauma causes physiological problems in the body over time and the body loses its ability to handle any kind of stress. Healing consists of rest, relaxation and the right nutrition and some retraining of the brain. It all takes time though, which costs money. But health is so important. Just going to try taking magnesium and malic acid to start the healing.
Jody 14/03/2019 at 1:12 pm
I have just read this interesting information as I am still waiting to see the Neurologist, I first saw my GP Feb 3rd 2019 but have been suffering for a year, just chose to ignore it!!
The trouble is I haven't had luck with employers, most of last year I was temping anyway and so was able to rest in between assignments having recently left a job of 8 years because of bullying and wanting more hours (the pain wasn't as severe as now) I had to leave my recent employment because they wanted a medical report from my GP and having just had an operation on my womb were less than sympathetic about that or the pain I was experiencing. I was a full time receptionist but this was a role which had me working on a desk hand built for people who were tall or not seated it was too high for me. The stool I sat on wasn't comfortable and requested arms for it so I could actually sit on the damn thing. I was expected to carry heavy items, rush around, walk, run upstairs and it was all getting too much. I actually walked out after receiving a horrible email for the HR manager which suggested to me that they didn't necessarily believe me. I walked out. I also suffer oral Lichen Planus which flares up with the fybro flareup and I have had issues with osteoarthritis (partial knee replacement right knee 2015 and left knee clean out 2017)
My dilemma at the moment is money as is for most people. I have applied for benefits have an understanding Husband to a degree but it is hard for him to understand, and I have just applied for a part-time reception position but have been honest about my health.
Really feel quite lost, the brain is working til I feel tired, but I need to earn money!!!
Anyone have any advise?
Thanks, Jody
Shell 11/03/2019 at 12:17 am
I have fibromyalgia and been with it for nearly 7 years I suffer really bad fibro fog and for the main have accepted it. For the last 2 yrs of my working life I have suffered crippling anxiety from the job and trying to get through the day without forgetting something. Unfortunately my manager thinks it's ok to make my life hell by ridiculing me if i have forgotten about something. I'm at the point now I want to resign as I have lost all self confidence since being diagnosed and have been made to feel my capabilities are limited. 16 yrs in the job and I just want it to all go away.
Rootie 21/08/2018 at 3:55 pm
After reading all the letters that fibromyalgia sufferers have shared with others it makes me feel slightly better just knowing that I’m not alone with this illness . It seems there are a lot of people out there that just don’t understand anything about it ! It looks like we all just have to soldier on and be very strong and support each other !! I have no doubt in my mind that some doctors think it is an imaginary illness ! I get no support whatsoever from my workplace management ! Fortunately I have understanding colleagues and family and friends !! Management say they are not qeuestioning validity of my illness when I’m absent occasionally but they are only interested in hours lost to nhs ...
Rootie 21/08/2018 at 3:51 pm
After reading all the letters that fibromyalgia sufferers have shared with others it makes me feel slightly better just knowing that I’m not alone with this illness . It seems there are a lot of people out there that just don’t understand anything about it ! It looks like we all just have to soldier on and be very strong and support each other !! I have no doubt in my mind that some doctors think it is an imaginary illness ! I get no support whatsoever from my workplace management ! Fortunately I have understanding colleagues and family and friends !! Management say they are not questioning validity of my illness when I’m absent occasionally but they are only interested in hours lost to nhs ...
Miss v 02/05/2018 at 9:42 pm
??????????
Just don't know what to do. Crawling to work. In tears most of everyday. How will I pay my mortgage? Where do I start? Sympathetic and wonderful gp.
So scared of not being able to work. But don't know what to do!!
Mazza4ever 08/03/2018 at 5:11 pm
I was told i have fibromyalgia last year as suffering for years. I started a new job as a health care support worker in november working for the nhs. My shifts were 12.5 hours a day which were too much and my manager was not understanding when i explained i physically cannot do the long shifts .her response was 'its the trusts policy and it works' .i was made to work on my own from the 2nd day.no supervision at all.told i had to hurry up and get my care certificate finished as they need me on nights.even though i was told i had 12 weeks to finish it. They did not give a dam .only bothered about having enough staff to cover . I have now left which i regret deeply. Because of this i am now scared to open up about my condition .
I have set up a page on facebook. Fibromyalgia won't be me.
Sammylou 06/03/2018 at 7:40 am
I too sympathise with all that have this condition. I have was diagnosed myself 2 years ago after doctor ruled out MS and other conditions. I work in a school with an understanding head so I am lucky. Often though it is others at work that don't understand as fibromyalgia is a invisible condition. I have found that mindfulness helps keep stress and anxiety levels down which prevents flare ups most of the time. I when I do have a flare up it can last for weeks. I get abdominal problems, sore throat, and flu symptoms, and extreme fatigue and that's without the intense pain. Sometimes it even hurts to touch my eyebrows. I try as I am sure others do to get through a day at work but that leaves me unable to function at home. So you are then left with a choice who suffers work or family.
Kirsty 09/02/2018 at 11:05 am
I was diagnosed 3 years ago with Fibromyalgia, Sjorgens disease and Rheumatoid arthritis.
I am a chef by trade and have worked hard to climb the ladder in a mostly male dominated profession. it goes without saying that my job is very physically challenging. I first went to a specialist hand surgeon when I experienced overwhelming pain in my hands and wrists and would get the shakes when icing elaborate wedding cake. I was also dropping things a lot. I was told I had carpel tunnel syndrome and went for the opp. Nothing changed afterwards except that my hands were not as strong and my fine motor skills left a lot to be desired. I went to get a second opinion and was then asked to take off my shoes so he could see my feet, and then my knees. He asked how long I'd had pain in these joints. Chefs stand for 12 to 16 hours a day and I was well used to the pain so I had learned to live with it. That is when I was diagnosed but he said I'd had it for at least 4 years already.
I find that having a strong mind set is vital! For me I cannot entertain the thought of pain in the morning. I just accept that its there, do the best I can on the day, and don't beat myself up for leaving things undone or choosing to go to bed early instead of going out with friends.
What I am struggling with though, is that all my training and experience is in food. I now need to look for a less physical job as my condition deteriorates but I am qualified for nothing else. We do not have a grant system in South Africa so I have to work to support myself. (I am single)
Can anyone shed some light on a career path that starts paying the bills from day one but that is not as taxing?
I have tried teaching, but those jobs are like hens teeth and still require you to be physical for at least 8 hours a day.
I am writing a cook book in the hopes that it will be published but that does not bring in money straight away either which I need as my medical bills are a sixth of what I currently earn.

Lastly may I just quickly add that good supportive shoes, and long hot baths steeped in Epsom salts have really helped for the pain when the painkillers and anti inflammatories don't seem to be doing their job. I have also made a helpful mind switch which keeps me motivated. I am not my diseases. I am more than just symptoms. I am first and foremost still the happy, fun-loving, creative and hard working person I have always been. I just happen to also have 3 auto immune diseases.
Shreklover 09/02/2018 at 9:48 am
I how do I deal with a boss that believes fibromyalgia is just being an hypochondriac. She told me in front of other members of staff that I am just an hypochondriac that loves being ill! I work 12 hours per week and in 6 years working there I've only had a 2 week period off work with a flare up. Today I'm taking the day off as I had a tooth out yesterday due to an abcess and my face is swollen and throbbing. I received a bad attitude because of it! Absolutely disgusted. Wouldn't mind but there are other people at work that have a day off every month with something or other.
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