Home > Facts > Disability & Mobility Allowance for Fibromyalgia Sufferers

Disability & Mobility Allowance for Fibromyalgia Sufferers

By: Jack Claridge - Updated: 16 Mar 2017 | comments*Discuss
 
Fibromyalgia Syndrome

Those of us who are unwell to the point where we cannot hold down a job or manage by ourselves can apply for help with additional benefits. The most common benefits open to those of us who fit these criteria are Disability Living Allowance and Mobility. Here we look at these benefits:

What is Disability Living Allowance (DLA)?

Disability Living Allowance (DLA) is a benefit that is given to those individuals who cannot work and find it difficult to cope by themselves. This benefit is split into three levels and each level is representative of the nature of your condition. There is a low, middle and high rate of benefit awarded and each rate is – as we have already mentioned – awarded depending on the nature and circumstances of your illness.

It is important to take into account that Disability Living Allowance is only given to those individuals who qualify and in order to qualify you must complete a medical assessment which is carried out by an independent doctor once your application has been received and processed. This examination will determine whether or not the information you have provided in your application is correct and will also assess at what level you may qualify for assistance.

You can claim Disability Living Allowance (DLA) if you are under 65, have a disability of a physical or mental nature and are unable to walk – or if your condition is severe enough that you need assistance when it comes to looking after yourself.

What is Mobility?

Mobility is the second component of the Disability Living Allowance (DLA) and is paid at two rates – either what is described as the lower or higher rate, depending on your condition. This addition sum is paid on a weekly basis and may be paid if you need assistance with travel.

For example if you cannot drive or have no transport then this additional sum can be used to pay for the cost of your travel either by taxi or public transport (should you be able to travel in this way).

Mobility can also be used for the purchase of a vehicle under the government’s Mobility scheme – this scheme allows you, or some designated by you as a carer, to have a car that will be used in order to transport you from A to B if your condition does not allow for travel by public transport or if you are too ill to walk.

It is important to note however that if you qualify for Mobility then you will not receive the additional sum of money as laid down in the Mobility component of the Disability Living Allowance (DLA) – this money is used to pay for the vehicle you use.

You may, in some circumstances, be eligible for the free road fund licence which is payable on a yearly basis. In essence the tax on your car is paid for and you receive your tax disc through the post at the time it is due – you however are responsible for making the claim for this tax at the right time.

Am I Eligible with Fibromyalgia?

As we have already discussed Fibromyalgia – along with Chronic Fatigue Syndrome (CFS) – is a difficult illness to diagnose so it may take some time initially before your doctor reaches a diagnosis. After this, should you decide to claim for Disability Living Allowance (DLA) then you should expect a lengthy wait as – although Disability Living Allowance (DLA) does cover this illness there are more rigorous assessments to undergo before agreement is reached.

What Happens if I am Refused Disability Living Allowance (DLA)?

If you have been turned down for Disability Living Allowance you have one month after you have been informed of the outcome to appeal the decision. If you are awarded an appeal then you may have to appear before an independent tribunal who will hear your case and also the case against your claim and it is their decision that is final.

If your application has been turned down then you should make grounds for appeal as soon as you can if you feel that your case is justified.

You might also like...
Share Your Story, Join the Discussion or Seek Advice..
[Add a Comment]
My fibromyalgia started after a severe spate of manager bullying at my work place,.my life has been ruined. my councillor said it had caused post traumatic stress and this has resulted in me suffering with fibro. I'm now losing my job because I can no longer function. I'm 60 years old this year and my ssp is ending. my I'll health retirement payment only gives me £33.00 per month and I've got no savings. cant focus on anything, all seams like gobbledygook to me. my words wont come out and I just burst into tears coz I don't understand anything any more. been in hospital with attempted suicide on more than one occasion. waiting for pip but I'm the unlucky one as usual that will get turned down coz my face doesn't fit, what's new. It's just not worth living like this.
jampot - 16-Mar-17 @ 4:27 PM
I have fms. Just been diagnosed and put on 300mg lyrica twice daily. Does anybody on here have funny headaches and cloudy vision? I also can't Wee properly, it just dribbles out?
Fibrosucks - 8-Mar-17 @ 5:16 PM
Hi I was diagnosed with fibromyalgia in 2001 my employers Dr at the time didn't recognise fibromyalgia at the time ,as they change my job to riveting.My GP sent them letter telling them I The consult rheumatologist had diagnosed me. I have struggled with this condition now it has impacted my mobility hip pain and arthritis in hands .hoping to get out off work though.ill health .can I claim benefits.
Mo - 11-Feb-17 @ 1:07 PM
I have fibromyalgia and rheumatoid arthritis. I feel useless, I am only 55. My doctor refuses to refer me to wheelchair services, so I am looking at trying to buy an electric wheelchair. They are so expensive. I have a normal wheekchair but my Husband is only half my size. He would push me anywhere, but I hate seeing him hurting from pushing me. I cannot walk more than five or six paces. I am doing seated exercises as the gym was too much for me. Don't know what to do. Feel trapped and useless. .
Jewels - 1-Oct-16 @ 4:21 PM
Hi all, I've had Fibromyalgia for around 15 years and have Hashimoto's Thyroiditis for around 6 years. I also have arthritis in my knee's, and neck and had a spinal fusion to L4/L5/S1 12 years ago. Although had the operation my back pain is still bad and I was told 2 years ago that I have a further diac gone further up leaking spinal fluid and offered me to have another spinal operation. But after the first operation said No, but I think I am eventually going to have it done. I sometimes have problems going a wee and had numbness around my groin and private parts which I think is linked to my back. I've had 3 operations to both my little fingers and had 3 ops to my left knee which also has arthritis in and was told 20 years ago that would need replacing when I get older. I've had another op to my right knee last year but waiting at this point in time for another op to that knee, which also has arthritis in. I had major nerve damage when had spine done which they tried to repair and I have 2 degenerative discs in my neck and was told to dangerous to operate on and I've been getting 2/3 major headaches every week and sometimes have he headaches for 9 days on the trot. I'm sure they are all linked to my Fibro, Hashimotos disease, arthritis and nerve damage. I have no energy and constantly tired. My vision has got worse and I'm very forgetful and I get very dizzy spells and leg cramps. Basically falling apart and only 49 but had this all start from my late 20's. I feel for everyone who has Fibromyalgia as it can be so bad with each day different from others. I get high rate DLA and low care indefinitely and waiting to hear about pip, yet another stressful few months. If you have Fibro try for Disability. Good luck to you all.
Quiff - 1-Oct-16 @ 1:36 PM
Hi all, I've had Fibromyalgia for around 15 years and have Hashimoto's Thyroiditis for around 6 years. I also have arthritis in my knee's, and neck and had a spinal fusion to L4/L5/S1 12 years ago. Although had the operation my back pain is still bad and I was told 2 years ago that I have a further diac gone further up leaking spinal fluid and offered me to have another spinal operation. But after the first operation said No, but I think I am eventually going to have it done. I sometimes have problems going a wee and had numbness around my groin and private parts which I think is linked to my back. I've had 3 operations to both my little fingers and had 3 ops to my left knee which also has arthritis in and was told 20 years ago that would need replacing when I get older. I've had another op to my right knee last year but waiting at this point in time for another op to that knee, which also has arthritis in. I had major nerve damage when had spine done which they tried to repair and I have 2 degenerative discs in my neck and was told to dangerous to operate on and I've been getting 2/3 major headaches every week and sometimes have he headaches for 9 days on the trot. I'm sure they are all linked to my Fibro, Hashimotos disease, arthritis and nerve damage. I have no energy and constantly tired. My vision has got worse and I'm very forgetful and I get very dizzy spells and leg cramps. Basically falling apart and only 49 but had this all start from my late 20's. I feel for everyone who has Fibromyalgia as it can be so bad with each day different from others. I get high rate DLA and low care indefinitely and waiting to hear about pip, yet another stressful few months. If you have Fibro try for Disability. Good luck to you all.
Quiff - 1-Oct-16 @ 1:36 PM
I have FINALLY been diagnosed with fibromyalgia this year, after having suffered with it for 17 years. I'm only in my 20's. I find it so difficult to move, i'm stiff and spend most of my time in a lot of pain. The slightest thing can set off a flare (my body temperature has dropped too low, too much/little exercise, not enough sleep, something has knocked into my body, as well as many other factors). I'm trying to work to pay for my rent and bills at the same time as spending 40+ hours studying for university (30 hours contact time each week plus extra study for exams). I also need to fit in trips to the gym to keep my body working as well as find the time to actually look after myself by doing food shopping, cleaning my flat, eating. I often need crutches to get to uni so that i do not fall behind, but trying to fit this all in each week often leads to a lack of sleep, worsening my pain, depression and already awful fatigue. Yet i have been turned down for financial assistance. I have doctors certificates and letters from my employer and colleagues but still unsuccessful. I understand that to look at i'm a healthy, athletic, 20-something in the prime of life. But if they were to spend a day in the life of someone suffering like this they would see how much work it takes to look like this on the outside, to even get out of bed and not be in agony. The hoops genuine claimants have to jump through is just ridiculous. I count myself lucky to have such a fantastic and supportive partner who goes above and beyond to help me every day. I hope that other people suffering with this have someone they can turn to for support like i can. Good luck with your claims, too.
Sam - 12-Mar-16 @ 2:58 PM
I am 71years old and I received disability until 65. now that I am on Medicare my husband says that my disability money is in with my Medicare check. it is not much of a check. is this true. I have fibromyalgia arthritis, osteoarthritis,sarcoidosis. neuropathy, diabetes, broken shoulder and had to have it replaced. I am in lot of pain. cannot work. in a wheelchair.fall a lot. can I get more help?
judy - 12-Sep-15 @ 8:20 AM
I was diagnosed with Fibromyalgia a year and the conditioner was getting no better I was sent back to see doctor at hospitial he said I was Fibromyalgia and myofascial syndrome I have swollen feet can't touch bottom of my feet burning on top of feet ankle so swollen and very pain full there so stiff ankles pop when walk if sit down there go so tight can't walk all so I have tennis elbowing in both elbows all so chronic pain in my body shoulder crack when move having muscles pain all over my body my fingers on both hands are like claws I can't straighten them my feet going the same I have a sleep problem at night I in so much pain I am working but I struggling to do my job I on medicating but it not helping at all this is getting me down does any one know would I beanle to claim sick money
shazzie - 16-Aug-15 @ 3:11 PM
To answer some of these questions, "...am I entitled to DLA?"No illness apart from MS (and a couple of others which I've forgotten) entitles you to be automatically classed as disabled and none guaratee you DLA/PIP. You have to prove the level of disability Fibromyalgia/SLE Lupus/ Hughes Syndrome etc causes you through your written application and vigorous assessments through the government appointed agent, eg: ATOS. The final decision is with the Dept of Work and Pensions and is subjective. They look at all the evidence and decide whether you fit their mysterious criteria. It is necessary for it to be this vague to avoid fraudsters working out how to cheat the system. I had neighbours commiting benefit fraud (they were caught) and they copied my way of walking to mimic disability and kept asking searching questions about how my illness affected me. I became supsicious and kept quiet, changing the subject etc. The tests are difficult but they are there to protect those of us who are genuine claimants. Tell them everything that you have to do to cope.Get back up letters from your GP and Social Services (get assessed and registered disabled by them) get witness statements from family, friends and work colleagues if available. Good luck.
Handsignals - 18-Apr-15 @ 11:05 AM
@glo - sorry to hear of your ailments. Apart from the advice in the article, I have included a link to the site Entitled To, where you can fill in a questionnaire and use the benefits calculator to see whether you are eligible for any benefits, link here. I hope this helps.
FibromyalgiaSyndrome - 12-Feb-15 @ 11:01 AM
I have fibromyalgia, and gave up work 2 Years ago, have difficulty walking or just moving sometimes. I do not claim any benefits,but have lived off savings and now my husband,am I entitled to any benifits. Please help
glo - 11-Feb-15 @ 2:23 PM
I have been turned down 4 times after sending them paper work confirming I have it along with degenritive disc disease and each time its returned they say its for different things that i can do for my self when a private doctors medical report clearly says i cant
do_ron69 - 9-Jan-15 @ 12:14 PM
Is Sjögren's syndrome classed as a disability in southern ireland
Gaga - 10-Oct-14 @ 11:20 PM
I am 55yrs of age suffering with fibromyalgia I have had this condition for over 8 years, I suffer with chronic sleep disorder, therefore I am taking anti depressant'smost morning I cannot move my whole body I feel like a robot very stiff and painful,I am so helpless and depressed about this yet the doctors don't have enough knowledge about the disease therefore its not seen as a disability, please let me know whether I would be entitled to D.L.A awaiting in anticipation for your reply.
KAZ - 12-Sep-14 @ 5:49 PM
Ive just found out, after telling the docs for years, that I have arthritis and fibromyalgia. I have suffered from depression for 9 years. I also have metal rods in my spine!!Wud it be worth trying to claim mobility?
bunbun - 3-May-14 @ 10:19 AM
I am on lower rate of dal last year I got a form to fill in because I have fibromyalgia , they turned me down so I only get the lower rate for depression, I was going to get intouch with them to appeal it, but my mother got ill and died 6 months ago the same time that I should have put in my appeal so what do I do now, I'm in pain 24/7 and there are weeks I can't get out of bed at all
Hills39 - 31-Jan-14 @ 1:35 AM
I am wanting some testical Microlithiasis please . My 15 year old son has been diagnosed with it & i cant find any imformation about it Thanx
me - 9-Jan-14 @ 3:47 PM
This website doesn't actually provide any useful information. I was quite excited when I found it but it's just waffle with nothing of substance or use. What a waste of space and energy.
Cal - 26-Nov-13 @ 2:14 PM
how can i get help and understand about fibromyalgia
maria - 26-May-13 @ 5:43 PM
Can you claim disability benefit for fibromyalgia in the republic of Ireland ?
Vicki - 4-Apr-13 @ 11:31 PM
been diaganosed with fibromyalgia a month ago .
mimi - 7-Jan-13 @ 10:04 PM
Share Your Story, Join the Discussion or Seek Advice...
Title:
(never shown)
Firstname:
(never shown)
Surname:
(never shown)
Email:
(never shown)
Nickname:
(shown)
Comment:
Validate:
Enter word:
Topics
Latest Comments
Further Reading...
Our Most Popular...
Add to my Yahoo!
Add to Google
Stumble this
Add to Twitter
Add To Facebook
RSS feed
You should seek independent professional advice before acting upon any information on the FibromyalgiaSyndrome website. Please read our Disclaimer.