Seeking Benefits if You Suffer from Fibromyalgia

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Seeking Benefits if You Suffer from Fibromyalgia

There are many individuals in the United Kingdom today who are suffering from the condition known as Fibromyalgia; however it is a condition that is difficult to diagnose and also difficult to monitor in terms of severity so therefore it is a condition that is difficult to legislate for when it comes to awarding benefits.

I Have Fibromyalgia what am I entitled to?

As a sufferer of Fibromyalgia you may be entitled to some additional benefits such as Personal Independence Payment (PIP) and in extreme circumstances Mobility but you must prove beyond any reasonable doubt that (a) you suffer from the condition and (b) it makes your life difficult if not intolerable.

Unfortunately Fibromyalgia - just like M.E (Myalgic Encephalomyelitis) - is a condition that many people do not know a great deal about. Indeed as well as this both conditions are often misdiagnosed and mistaken for each other. In addition to this both conditions are such that many would not know if you suffered from them unless they were family or you chose to tell them.

This leads us into the territory of an illness that does not need to have a bandage or plaster put on it; indeed it is an illness that is often unseen and unspoken about.

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How Should I Claim Benefits if I Have Fibromyalgia?

Again the biggest down side to claiming benefits for a condition such as Fibromyalgia or M.E (Myalgic Encephalomyelitis) is that it cannot be seen and is often difficult to diagnose because of the wide variety of symptoms that can occur. You can only make a positive claim for benefits if your doctor has diagnosed you as having either Fibromyalgia or M.E (Myalgic Encephalomyelitis) and this is something that can take quite some time.

Both conditions are such that they have - as we have already pointed out - a wide range of symptoms and therefore have to be thoroughly tested before a diagnosis can be decided upon. Indeed some sufferers can find they have to wait upwards of two years before a final diagnosis is agreed upon and only then this happens after you have seen specialists, consultants and had numerous consultations with your doctor.

You should be aware that claiming benefits for such a condition will mean that you will have to be means tested - this means that the benefits agency responsible for issuing benefits for you may ask you to see an independent doctor or consultant who may - if they think it is necessary - visit you in your own home to assess your level of physical activity.

Your situation may be slightly different. ask a question below ↓ and our editorial team will reply with our advice.

If My Claim is Disallowed Can I Appeal?

Yes everyone who applies for Disability Living Allowance (DLA) or Mobility may appeal their decision if they feel they have been unfairly refused. You should be aware however that this process may also take some months and may also involve assessments and meetings with independent consultants and specialists.

You should also be aware that there is no guarantee that your claim may be upheld. You should, before applying for any benefits, make sure that as far as your doctor is concerned, the diagnosis he or she has made is as accurate as it can be.

It is also worth consulting with an independent specialist yourself - if you can afford to do so - in order to establish that your doctor's diagnosis is correct.

The Next Step

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Now that you have read through the advice above, you might want to put it into practice. Our Flare Up Analyser lets you describe your current flare up and we will help you identify likely triggers and what might ease it. Try it now →

Ask Fibromyalgia Syndrome a Question
Lele 27/10/2020 at 12:52 pm
I've been diagnosed with fibromyalgia and I suffer terribly with fatigue. I have recently started a less physical and stressful job but the fatigue is just so overwhelming. Would I be able to claim any benefits. I've always worked and I try and stay active but the fatigue just seems to be getting worse. Going part time could be an option but only if I'm able to get some help with benefits. Any help would be greatly appreciated
Sue 14/07/2020 at 9:33 am
I was diagnosed with Fibromyalgia in 2013 and have always worked that is until 24th June this year. I have no idea if I am able to claim anything or even where to start. I don't go to the doctors very often or take much if any medication as it makes me feel worse. Any advice or a pointer in the right direction would be much appreciated
Pisces 06/07/2020 at 10:09 pm
I've been recently diagnosed with fibromyalgia been suffering over a year now and seems to be getting worse ?? I'm struggling to keep my job of 24years in retail , can I get help with benefits s
Wheelie 30/01/2020 at 11:58 am
Hi. I was diagnosed with fibromyalgia about 5 months ago but have been suffering with the fatigue and joint pain for longer, I also have oesteoarthris which I've had for about 10 years. I am also a cleaner, I clean private houses in my village, I use to clean 8 houses a week and each house was 2 hours ,I'm now doing one house a week for 2 hours. I've recently applied for PIP, had the assessment but was turned down. Why?
Prissa 23/09/2019 at 3:55 pm
Hi I’m in my 50s, I work full time. All I can do when I get back from work is go to bed, I also have to rest most of Saturday. I wake to
pass water three or four times at night and I’m often in pain in my feet, knees, hips and shoulders. I’m overweight. I find it hard to concentrate and I’m forgettful. I am sure that with these symptoms I would get a diagnosis of FM. What are the chances of getting benefits that would enable me to give up work? This life is just so hard.
Mo 04/09/2019 at 1:52 pm
Hi 5 years ago I was diagnosed with fibromyalgia, I also have crohn's disease and angina and had a TIA I also have osteo arthritis and RA. I was awarded the higher rate of DLA mobility years ago. Can I claim any other benefit as I struggle to do many household jobs now. I'm 73 years old. Thank you.
Jm 23/08/2019 at 10:26 pm
Took less than a week from 'medical assement' to decide I was fit to work, told I'll still get universal credit (as I've been signed off). Going for a mandatory decision, got my assessment couldn't believe the crap that had been written. The assessors have no understanding of fibromyalgia, it's a condition that's been passed by house of lords as a disability. . . . . Maybe it's time sufferers start petioning local mp's
Master 01/08/2019 at 5:15 am
Iv had ME for more than 15 yrs and recently diagnosed with fibromyalgia. I have found work very difficult and recently applied for pip but was refused.

What else can I apply for as it's getting worse day by day
Ellie 03/07/2019 at 6:53 pm
I have Fibromyalgia and Osteo Arthritis. I have had to give up 4 jobs since 2012, due to constant fatigue and pain> I now work 17.5 hours a week as a cleaner. Am I entitled to any benefits?
Toequilla 20/05/2019 at 11:58 pm
Hi I really need some help my mother is so beaten down by her illness she also has fibromyalgia. She's been suffering with it for years but only just got diagnosed with it after many trips the the doctors countless testing pain patches that she got addicted too. Also injection Never mind how many tables they gave her. Tried everything acupuncture and sports injury masseuse. She's got to a point where it's over taking my mother and it's heartbreaking to see. That she has to work because she can not get any help. She fought 5 years to find out what is wrong with her. And now with no help she struggles to get out of bed for work she sleeps 3 for 3 hours a night because of the pain or her legs twitching.and now the sick day Which like any employee gets annoyed about the endless sick days. I have no idea what to do but I can't see my mum suffering like this. And I'm sorry to anyone else out there who is suffering with this illness too. I desperately need help....
Bb 09/05/2019 at 9:19 pm
Hi I'm at my whits end..diagnosed with fibromyalgia 4yrs ago... I've slowly reduced my working hours over the past 2 years.. I had a flare up recently due to added stress personality..now I seem to be penalised because of it..i work in retail and we have a new manager who is not happy that I can't work evenings due to my fibro.. I've worked there for 23yrs as a supervisor and am now being victimised due to my fibro.. Im trying to stay at work but its difficult,, what am I entitled to benifit wise
Jules 14/03/2019 at 1:07 pm
I have arthritis and plus fibromyalgia to in lots off pain to can you get high rate off pip?
Lamby 11/02/2019 at 10:29 am
Have had fibo for about 5 years but just been diagnosed, also got Raynaud's, still manage to work full time with a struggle the college were I work are very supportive. Thinking of making a DWP claim will see what happens.
Dopeycc 06/12/2018 at 6:55 pm
I am about to be dismissed from my job with the Local Authority who I have worked for, for just over 30 years. On the grounds I am unfit to carry out my job. This is backed up by an occupational health Doctor. I am beside myself with worry as I have a mortgage and other financial commitments. I have a work pension which I've requested I have access to but due to being under 50, I'm 47 I'm worried will be refused. After more than20 years of suffering and muddling on I've just had the diagnosis of Fibromyalgia. My concerns are that this is still fairly newly recognised under the equality act I may well be refused my pension.i am starting to stress really badly which is massively affecting the FM. I'm spiralling downward and the future looks really bleak.

I've read PIP can be applied for and maybe ESA but I've never claimed anything in my lifetime fe and don't no where to turn. Please could anyone give me a ray of hope.im desperate.
Pigeon 04/12/2018 at 7:48 pm
Hello,my sister went to assessment for pip,but Friday just gone got a letter saying that I'm not entitled to pip.my sister came with me,when I was assessed and explain to them,that I'm in severe pain and spend days in bed,needs help from my mum and help from my sister.cause I walked to the assessment room they turn me down.my sister will be writing a letter of complaint,to them.and also write to my MP.
Ali 12/10/2018 at 10:44 am
I have had fibro for 6 years now. I am in bed now with pain and fatigue I also am getting over neck cancer and treatment . I can't claim universal credit as my husband works . My mandatory reconsideration for my pip has just been turned down . Long list of reasons why but basically made me out to be a liar and said I looked well. Wouldn't say that if they could see me today. Should I appeal which could take up to a year or start a new claim. Any advice would be appreciated.
DebsV Editor 07/09/2018 at 3:29 pm
@Helpothers2 - thanks for this information - it helps not to feel so alone and that there is something we can do to make things better for ourselves rather than just self-medicate with painkillers. Have you found anything that particularly works for you?
Helpothers2 07/09/2018 at 1:20 pm
Hi everyone. So sorry to hear how difficult it is living and coping sith fibromyalgia. I was disgnosed 2003 after a few years of various tests. Flare uos are awful and made worse with stress! Can I encourage you to visit a website called "Health unlocked Fibromyalgia" I believe Fibromyalgia Uk is connected with this. It have lots of people sharing help and information about all sorts of things especially medication and claiming benefits. It is a very supportive site.

Also can I encourage you to get a book called "Treating and beating Fibromyalgia and Chronic Fatigue Syndrome" by Dr Murphree Amazon about £18. Very informative and gives a lot of natural ways to help ourselves. I started using 5HTP which naturally boosts Serotonin and melotonin to help reduce pain and improve sleep.
Hope this helps someone. Take care ??
Jonesey 08/07/2018 at 10:42 pm
PIP UPDATE - A month or so ago I posted on here what my PIP assessor told me in relation to my FM diagnosis and how it is perceived with suspicion by the DWP. I have long term Parkinson's Disease (PD) and the first thing my PIP Health Professional/Assessor did when she saw me and my PD symptoms was apologise for me having to attend a face-to-face consultation in the first place. I have just received my PIP assessment report and scores and was awarded enhanced rate for both components as I was under the old DLA system. However, what I noticed from my assessment score, and I as expected, was I received zero points for my FM symptoms. I recently read the DWP recognises FM as a legitimate health condition however, "recognising" it is one thing but accepting it as a being sufficiently disabling to award PIP is clearly something that will sadly not be the case for most.
Jonesy 08/06/2018 at 8:33 pm
I attended my PIP assessment earlier this week. I have long term Parkinson's Disease (diagnosed 15 years ago). Last year I noticed my pain had become more than I experienced in the past. I see my Consultant every 6 months and I hadn't been to my GP practice for 5 years but on this occasion I saw a young locum GP who diagnosed FM which was something I'd never heard of. In truth, the additional pain I experience with FM is NOTHING compared to life with Parkinson's so I called the DWP asking them if I should even mention FM on my claim form as if the pain from this FM was all I suffered with I would be back in the real world, still doing my old job and getting on with life and wouldn't even consider trying to claim a "disability" benefit (I continued working full time for 8 years after I was diagnosed with Parkinson's). I was told PIP assessment providers, like the majority of the medical profession, do not recognise FM as a genuine illness and they advised me NOT to. I discussed FM with my Health Professional at my PIP assessment and she told me it simply was either not taken seriously or not believed and awarding disability benefits for FM, a condition that can be easily faked as there are no clinical tests and diagnosis is based on opinion only, would open the floodgates for the workshy scroungers and fakers the DWP are currently attempting to weed out with their shift from DLA to PIP targeted at the millions of others who currently claim trillions of pounds who are more than capable of pulling their weight and paying their way in life, but pretend otherwise. Not my words.
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