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Seeking Benefits if You Suffer From Fibromyalgia

By: Jack Claridge - Updated: 6 Dec 2017 | comments*Discuss
Fibromyalgia Syndrome

There are many individuals in the United Kingdom today who are suffering from the condition known as Fibromyalgia; however it is a condition that is difficult to diagnose and also difficult to monitor in terms of severity so therefore it is a condition that is difficult to legislate for when it comes to awarding benefits.

I Have Fibromyalgia what am I entitled to?

As a sufferer of Fibromyalgia you may be entitled to some additional benefits such as Disability Living Allowance (DLA) and in extreme circumstances Mobility but you must prove beyond any reasonable doubt that (a) you suffer from the condition and (b) it makes your life difficult if not intolerable.

Unfortunately Fibromyalgia - just like M.E (Myalgic Encephalomyelitis) - is a condition that many people do not know a great deal about. Indeed as well as this both conditions are often misdiagnosed and mistaken for each other. In addition to this both conditions are such that many would not know if you suffered from them unless they were family or you chose to tell them.

This leads us into the territory of an illness that does not need to have a bandage or plaster put on it; indeed it is an illness that is often unseen and unspoken about.

How Should I Claim Benefits if I Have Fibromyalgia?

Again the biggest down side to claiming benefits for a condition such as Fibromyalgia or M.E (Myalgic Encephalomyelitis) is that it cannot be seen and is often difficult to diagnose because of the wide variety of symptoms that can occur. You can only make a positive claim for benefits if your doctor has diagnosed you as having either Fibromyalgia or M.E (Myalgic Encephalomyelitis) and this is something that can take quite some time.

Both conditions are such that they have - as we have already pointed out - a wide range of symptoms and therefore have to be thoroughly tested before a diagnosis can be decided upon. Indeed some sufferers can find they have to wait upwards of two years before a final diagnosis is agreed upon and only then this happens after you have seen specialists, consultants and had numerous consultations with your doctor.

You should be aware that claiming benefits for such a condition will mean that you will have to be means tested - this means that the benefits agency responsible for issuing benefits for you may ask you to see an independent doctor or consultant who may - if they think it is necessary - visit you in your own home to assess your level of physical activity.

If My Claim is Disallowed Can I Appeal?

Yes everyone who applies for Disability Living Allowance (DLA) or Mobility may appeal their decision if they feel they have been unfairly refused. You should be aware however that this process may also take some months and may also involve assessments and meetings with independent consultants and specialists.

You should also be aware that there is no guarantee that your claim may be upheld. You should, before applying for any benefits, make sure that as far as your doctor is concerned, the diagnosis he or she has made is as accurate as it can be.

It is also worth consulting with an independent specialist yourself - if you can afford to do so - in order to establish that your doctor's diagnosis is correct.

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Hi I have fibromyalgia,under active thyroid and B12 deficiency also I have arthritic hands and have regular cortisone injections. I was assessed for PIP and only gained 4 points I have been on DLA for the last ten years I’m 67 years old. The Asos assessor said she had given me a muskeletor examination which was untrue and also the assessment took 2 hours when it was only 20minuites. I have applied for a mandatory consideration if this is unsuccessful can you help me in any way.
Lizz - 22-Oct-17 @ 8:56 PM
Hi. I got diagnosed with fibromyalgia not long ago. I did ask to get moved to the support group onESA due to the severe effects it has on my day to day living. I got denied and put in the wrag group. I also had to "redo" my PiP claim. I had low rate of living. I have now found out that that has been denied as well and I'm not entitled to any benefits. Even tho my health is WORSE now Then it was then. Please help! What should i do next? Where can I get help with appeals for not ESA and PiP? I have become very depressed due to all of this as well. And now I'm seeing a specialist regarding that. High blood pressure is also due to all of this stress. Not to mention all the fibro flare ups! I have never been depressed my entire life before. And I'm on sue dial watch currently (need to contact my doctor every other day, and report to my specialist every day). This is until I can get proper help for my mental health. So please. If any one knows any direction on where I should turn? Where I can get help for being what I feel discriminated because I have fibromyalgia and NOT a illness they can see. /many thanks in advance Therese
Therese - 19-Sep-17 @ 1:38 PM
Hi I am 71 years old and suffer from fibromyalgia, anginaI have an Illeostomy for Crohn's disease and have had a mini stroke. I currently get higher rate of mobility allowance and was wondering if there is any other benefit I should claim. Thanks
Nantoisla - 28-Aug-17 @ 10:17 AM
Hi I was just wondering I get DLA for Eplisey but have had a letter about a change over to PIP so I was wondering can they refuse you even thou I'm on 40 tablets a day and still suffer with fits and don't know when one is coming on and have no control when having one. ALso I have been disognised with fibromyalgia in the last year will this effect my claim in any way as I am still trying to work but have lots of pain daily and and very tired some days the flare ups are that bad I can't work as I can't move out of bed. CAn anyone give me any advise many thanks Diane
Dd - 14-Aug-17 @ 11:36 PM
Yes it is possible to get a blue badge for having fibromyalgia. Bucks.19/7/17
Cha - 19-Jul-17 @ 8:43 PM
Does anyone know whether it is possible for a fibromyalgia sufferer to be issued with a Disabled Blue Parking Badge?I don't think I would qualify for benefits after being means tested, but a Blue Badge would help me greatly as I struggle to walk any distance and struggle with shopping bags etc.
Bucks - 11-Jul-17 @ 9:36 AM
I am a full time carer to my disabled wife and was diagnosed with fibro and cfs a few months ago. I have bouts of extreme fatigue but thankfully cope reasonably well. I would like to know if i get worse can i claim esa and how would this affect my carers allowance and income support claim. Thanks for any info
Nikki - 16-May-17 @ 4:50 PM
hi I do believe I have this. The wors thing for me is the pain I have when holding my one year old let alone the pain I feel Day to day. I have just been signed off for a month from work I have tried work for 5 months the more I work the more my kids suffer not sure what to do!!!! P.s was told it was vit D for 3 months before hand.
Wee - 12-May-17 @ 9:41 PM
Lissa coukd I ask what job uou manage to do.I have been off work 5 months now.I gave isteoarthritus asthma and fibromyalgia.Thank uou
Hev - 30-Mar-17 @ 12:41 AM
Jamil - Your Question:
Hi I am suffering from osteoarthitis and fibromyagea am I elijable for any benefits many thanks.

Our Response:
You can check via the Entitled To link here.
FibromyalgiaSyndrome - 17-Nov-16 @ 1:47 PM
Hi I am suffering from osteoarthitis and fibromyagea am I elijable for any benefits many thanks.
Jamil - 12-Nov-16 @ 9:05 AM
Sorry, but your info on benefits needs to be amended. People with Fibromyalgia can claim Personal Independance Payment. It is NOT means tested, and you can still work whilst getting it. Yes, you do need to attend a medical, and you should always ask for a copy of the report. If you fail to get an award, you first request a mandatory reconsideration. If DWP still refuses you, then you should appeal. The appeal is held before an independent panel of two or three people, usually a lawyer, a doctor, and a social or care worker, and takes about 30 mins. I would advise anyone to get a professional to represent them. Many CABs or law centres will do this free of charge. You can also claim Employment Support Allowance which allows you to work 16 hrs or less per week. It has 2 levels - contributions based or means tested. Again you need to attend a medical.
Gnome - 26-Jul-16 @ 12:26 AM
lissa - Your Question:
Benefits I have fibromyalgia and chronic pain I work 10hours a week Monday-Friday 4pm-6pm

Our Response:
If you are requesting whether you are entitled to any benefits then please see the Turn2Us link here. I hope this helps.
FibromyalgiaSyndrome - 18-Apr-16 @ 2:24 PM
benefits I have fibromyalgia and chronic pain I work 10hours a week Monday-Friday 4pm-6pm
lissa - 17-Apr-16 @ 11:31 PM
Hi I've been diagnosed with fibromyalgia as well as vit d deficiency, I also have copd and asthma, a large hernia in my stomach, a stomach ulcer from taking Meds and a bad back and hips, also scoliosis and because of all the steroids I take for my copd flare ups I now have problems with bone density. I work full time in a heavy demanding job as a carer in a brain injury unit, I'm really struggling as nobody at work seems to take any notice of my illness just giving me warnings for sickness, I am in debt and can't afford to give up work"....
Joey66 - 6-Aug-15 @ 9:06 AM
@Weso - Given that muscle weakness is a common symptom and after-effect of meningitis, then there could be some crossover, a lot of people seem to think so, so you are definitely not on your own there.
Georgia - 8-Jun-15 @ 10:26 AM
Just read Wrathy's comment.I have been diagnosed with Fibromyalgia and life is a struggle.What struck me is the fact that I also had bacterial meningitis a few years ago and always wondered whether that had anything to do with the fact that I now suffered with fibromyalgia syndrome.
Weso - 5-Jun-15 @ 1:18 PM
@Wrathy - I am sorry to hear this. You may be able to get some support or direction from a group such as Fibromyalgia Support Net, link here . I hope this helps.
FibromyalgiaSyndrome - 9-Apr-15 @ 1:53 PM
I had bacterial meningitis 3 years ago & after I had this I was not feeling to good , I kept going to the doctors as I felt that I was going to die !! The symptoms it has left me with sometimes are unbearable !! I was always very active such as competing in kickboxing torniments & now I hate the way I am Because Istruggle most days with fatigue & pain !
Wrathy - 7-Apr-15 @ 4:48 PM
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